CaringBridge.org is a non-profit 501(c)(3) organization offering free personalized Web sites to those wishing to stay in touch with family and friends during significant life events.
Mom's Daily Thoughts
Isabel's mom, Leslie Jurado, periodically shares her thoughts, feelings, emotions, and concerns in a journal on this site. You can follow this journey along with the Jurado's plus you can add your own comments and words of encouragement.
National MPS Society
The National MPS Society's goal is to ultimately find a cure for MPS and ML disorders.The National MPS Society will achieve this goal by supporting research, providing support to individuals and their families affected by an MPS or ML disease, promoting public and professional awareness, and significantly increasing participation by regions.
MPS Society Australia
The Australian MPS Society is a non profit organisation formed by parents, relatives and friends of those suffering from a range of rare genetic disorders known collectively as the mucopolysaccharide (or MPS) diseases.
Ben's Dream & Sanfilippo Research Foundation
Their mission is to promote awareness and raise funds to support research aimed at finding a cure so Benjamin and his friends can realize their dreams.
Canadian MPS Society
The Canadian Society for Mucopolysaccharide & Related Diseases Inc. is an organization committed to supporting families affected with MPS and related diseases, educating medical professionals and the general public about MPS and related diseases, and raising funds for research.
This forum offers a great source of support for affected families by providing a place to come together to share ideas, concerns, questions, and encouragement.
Society for MPS Diseases (UK)
The Society for Mucopolysaccharide Diseases (the MPS Society) is a voluntary support group founded in 1982, which represents from throughout the UK over 1200 children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.
Lauren’s Hope Foundation
This family also lives in South Carolina and has provided support and encouragement to the Jurado family since receiving Isabel’s diagnosis. Their foundation is dedicated to medical research for Sanfilippo Syndrome and using Lauren’s life to glorify God. We hope to follow in their footsteps.
Join The Search
A nationwide campaign launched by the National MPS Society that urges parents, physicians and the American publicto help identify children with MPS in order to drive earlier diagnosis and to ensure optimal disease management.