HOPE FOR SANFILIPPO
The Isabel Jurado Foundation, Inc. (IJF) was incorporated in October 2005, and received 501(c)(3) status in November 2006. It was founded in honor and memory of those children, past and present, who have suffered the deadly impact of a genetic disorder called Sanfilippo Syndrome. It is the sincere hope of IJF that through research and medical treatment this terrible disease can be cured in the not too distant future.
SC Secretary of State Office: "According to the financial information filed with this office, this organization devoted 56.1% of its total expenses to program services during the year reported."
Through there help we are able to obtain a respite worker for Ross, whom is now home bound, to allow Jessica a day to run errands..... Thank you for your generosity and support of our family.
Jessica Davis - Ross 10 & Meredith 5 - MPS IIIA
REQUESTING YOUR SUPPORT
OUR CAUSES
Bringing Hope, Opening Doors
The Isabel Jurado Foundation works to provide quality, long-term solutions for a number of pressing issues affecting our MPS community. Our most significant causes are those that are often brushed aside by most. Our battle is against MPS disorders, and we would love for you to become part of that change today.
FAMILY SUPPORT
Helping Others
IJF's MPS Family Support Fund is to provide funding for home modifications, medical supplies/equipment, respite care, and other services/items needed to ease the financial and emotional burden of caring for a Sanfilippo Syndrome or any other MPS child while improving the quality of life for the entire family.
IJF does not provide funding for medical supplies/equipment already covered or paid for by insurance or Medicaid.
Medical documentation verifying the MPS diagnosis is required before funding can be allocated. You are invited to contact us with a brief description of your need. After the initial review, we may contact you to discuss your request.
RESEARCH ASSISTANCE
Finding Treatments
The purpose of IJF's Research Grant/Fellowship Funds is to provide funding for research on cures and/or treatment for Sanfilippo Syndrome - MPS Type III. Our goal is to provide "help for today and hope for tomorrow"
You and your institution are invited to contact us with a brief description of your needs. After initial review, we may contact you to further discuss.
"Let each of you look not only to his own interest, but also to the interests of others"
Philippians 2:4
PO Box 12061
Rock Hill, SC 29731
US
888.622.9975
Tax ID# 20-3903321